What We Do


We educate and raise awareness.

Because girls with Rett Syndrome have the right to be heard. 

We support families.

Because they are the heroes, tirelessly caring for their daughters, sisters and granddaughters. 

We fund research. 

Because the world needs these girls. 

We inspire action.

Because change starts with a simple belief - that girls losing the ability to walk, speak or use their hands for a lifetime is unacceptable.

About Us Founder's Story

Meet the Girls


Girls are usually diagnosed Rett Syndrome between 1 and 3 years old, often seeing a quick regression in their development before the diagnosis. It takes away their ability to speak, walk, crawl, or use their hands. But they are strong, bright, beautiful, and the ones who inspire us to fight with every drop of energy we have. Read their stories, and share them with your community.

Find Her