The Power Team is a group of passionate volunteers who are committed to our cause. We rely on their energy, compassion, and unrelenting dedication to our community to help deliver the best we can to our families, donors, and supporters.
"When Sophia was diagnosed with Rett in 2006 I was overwhelmed by the (lack of) positive information available, lack of knowledgeable doctors, and the statistics that were presented in regards to quality, and quantity of life. I felt there was little hope, and so little to believe in.... It was years later when I learned of Girl Power to Cure, and our lives were forever changed. I learned that there was HOPE! That we were not alone, and that together~ we CAN make a difference. A simple invite for Rockin' for Rett gave me an insight to who and what GP2C was really all about.
Strangers welcomed us into their home, shared meals with us, and treated us like family. My son learned that there are kids, all over the world with a Rett sister~ just like him. Through Girl Power we all formed friendships, and found a place to turn to for strength, guidance, advice, and support. Girl Power is a symbol of strength and courage. It's flower, a simple reminder that if we believe, anything is possible. I am honored to be a part of this organization, and am looking forward to meeting and helping other families on this journey."
Mimi lives in Indiana with her son Calen and daughter Sophia.
Visit Sophia's page
My name is Vanessa Covington. I am married to Phil and we have two boys (19, 16) and Martilee (14). We have lived in many places, but currently reside in the small town of Glenwood, IA. I am a stay at home mom who enjoys being creative, going "junking", and running #untilshecan.
Brittany was born and raised in Huntsville, AL. She attended Lipscomb University where she met her husband Ben Goodman. Brittany and Ben now live in Nolensville, Tennessee, with their two beautiful girls, Blakely Layne (age 5.5) and Andi McCarley ("AndiMac", age 3). After Blakely's diagnosis at age 3.5, Brittany and Ben started a Facebook page and website called, "Join Team Blake" to help raise money and awareness for Rett Syndrome, as they share Blake's ongoing story of life with Rett Syndrome. Brittany has a degree in Communication and Marketing, which have been immensely helpful in helping spread the work about Rett Syndrome and the hope for the CURE. They are fully devoted to educating their community of support, AKA "Team Blake", about Rett Syndrome, as they share Blake's challenges and struggles, but also each and every precious victory she has along the way. Their message is one of HOPE. Blake and all girls with Rett Syndrome are smart, and they need our help to find their voice! #untilshecan
Hello my name is Maria Hernandez and this my Goddaughter/Niece Danai Gutiérrez. We are from Texas and she is 8 years old. I love raising awareness every chance I get for her and for all of our girls. Danai's favorite therapy is horse therapy at Unbridled. I dream of the day we have a cure for our girls.
"Brynn has truly made us believe in hope. Hope is a wish in your heart of good things to come. We know her sunshine will come as long as we continue to believe. We ARE believers! We joined Girl Power 2 Cure for support and to help contribute in finding a cure for all of the sweet angels whom suffer from Rett Syndrome."
Kristin is a stay at home mother to two beautiful children in Columbus, OH.
"Sometimes you have to grow where you are planted."
Those are the words my mother said to me not long after we received Evie's diagnosis of Rett Syndrome. At the time, those words stung because I didn't want to be planted here. It was scary and unknown. I just wanted to stay in my bitter shell. Then I decided I wasn't going to live like that anymore. I contacted Ingrid and asked how I could help. A short drive and a can of paint later and I found my purpose. If I was going to be planted in Rett Syndrome, then I was going to be a bright flower in an otherwise cloudy world. We don't always get to pick the soil we are planted in, but we do get to choose how and what we grow. Everyday I choose to grow with hope; knowing that our girls don't fit into a "one size fits all" box. They are smart. They are funny. They are patient. They are so strong and brave. They are capable of so much more than people know and every day Evie surprises me with what she can do.
My hope has flourished since meeting Ingrid and other families from all over the country. They have been an source of encouragement and understanding and without them I would be a bit lost. They inspired me to run a half marathon with them in 2015. They are helping me grow as a mother and an individual. I am proud to be a part of Girl Power 2 Cure and feel so honored to be a member of the Mother's Advisory Board. I am looking forward to watching our hope spread and helping others just like these families have helped me.
-Stay at home mom/wife, mother of Evelyn (age 4), champion of hope
My name is Morgan, and my niece has Rett Syndrome. She is only 4 years old and she has made such a positive impact in my life. I have a tremendous passion for raising awareness and funds to find a cure for Rett Syndrome. I am either baking dog treats for my business, Harley's Bakery, or fundraising for Girl Power 2 Cure, and sometimes both!
My name is Karla Perez from Donna,TX (Down by the Border) I am bilingual English and Spanish. I'm currently a stay at home Mom of three Diego 10, Luz Viviana 8 and Samantha 3. Being a stay at home mom for the past three years has allowed me to get more involved in raising awareness and funds for Rett Syndrome research. I enjoy helping newly diagnosed families in the USA as well as Mexico. I am honored to be part of the Power Team and look forward to working with many families.
Quinn was diagnosed with Rett Syndrome in May of 2005. Our world was turned upside down. As our family was adjusting to the struggles and challenges of life with Rett Syndrome, I met Ingrid Harding. We had many conversations about the organization she was developing to help the families and girls with Rett Syndrome. I was in awe of her vision and goals for Girl Power 2 Cure. You could say I have been with Ingrid since “the beginning." She has formed an amazing organization that is mainstreaming awareness of Rett Syndrome, and offers ALL of us a place to turn for strength, advice and support.
I truly believe that our family was chosen to be a part of this incredible journey to find a cure for Rett Syndrome. We are so proud to be Quinn’s parents. She is our inspiration every day. Her patience, and love for life gets us through the toughest of days.
I am honored to be a part of the Mothers' Advisory Board and am looking forward to meeting and helping other families on this journey.
Niki has been a Registered Nurse in the Emergency Room for 20 years. She lives in Illinois with her husband Cliff and their children: Quinn, (10 RS), Ryker (10), and Spencer (9).
At the time of Courtney's diagnosis we were simply heart broken, scared, helpless, and lost beyond what words can describe. Every doctor we went to never heard of Rett Syndrome and the specialists that were familiar with Rett Syndrome wanted to prepare us for the worst. Our daughters future flashed before our eyes. When it's your daughter, when it's your child, you will move Heaven and Earth to search for answers and to fix what is broken.
We are blessed to be surrounded by some amazing friends and family that have stood by our side through the good times and the bad. A couple of years after diagnosis we attended a golf tournament in our area for Rett Syndrome. The event represented Girl Power 2 Cure and there we met a remarkable family, The Brooks. We knew at that point we were meant to be with this organization. A non-profit that is filled with hope, dedication, support, and loving caring individuals. Spreading awareness and raising funds for continued research is key. It has been proven Rett is reversible!
I am excited and honored to be part of such an inspirational group. I am looking forward to meeting and helping other families through this Rett journey. To empower the hope, embrace the possibilities and turn our dreams into realities. Together if we believe we can achieve!
Ronda has been employed for over 10 years at financial institution. She resides in Little Elm, TX with her husband, Wally Trester, who also volunteers on the Board of Directors; and their two children Deven (15) and Courtney (8 RS).
I joined Girl Power 2 Cure after we learned of our daughter, Laura's diagnosis of Rett Syndrome in March of 2007. Since then we have learned so much from her and we believe she was sent to us to teach us so much about love, patience, and life. Girl Power has given us a place to go to for help and be a part of an incredible journey.
Tina is a high school music teacher in Tucson, AZ. Her daughter is Laura.
I am not only a volunteer and donor, I am also a mother of a Rett girl. This organization is more than inspiring! They made me want to do more than just wish and pray for a cure, but rather become part of finding one! They make you feel so welcomed and understood, as if they have known you all your life.